Unable to cure their kids’ ultra-rare diseases, Israeli parents built company saving others

In 1984, Augusto and Michaela Odone discovered that their 5-year-old son, Lorenzo, was afflicted with adrenoleukodystrophy (ALD) – a rare genetic disease that leads to a rapid deterioration of the nervous system. The doctors offered no hope, and Lorenzo’s parents chose to take their son’s fate in their own hands. They began to study biochemistry in the library, met with doctors, scientists and support groups. The result was a solution of oleic and erucic acids, developed to delay the disease’s progress.