Newswise — For the past several years, Robert Kay, MD, has been part of an international group of experts with an ambitious goal: shaping the future of orthopedic care for ambulatory children with cerebral palsy.
“There’s so much variation in how surgeons approach these complex patients,” says Dr. Kay, Chief of Orthopedic Surgery and Director of the Jackie and Gene Autry Orthopedic Center at Children’s Hospital Los Angeles. “Our goal is to provide consensus guidelines—not one person’s opinion—to aid surgeons in their clinical decision-making and help ensure the best care for each child.”
The group, which includes 16 surgeons from 15 leading centers in North America, Europe and Australia, recently published guidelines for two types of surgeries designed to address knee problems in children with cerebral palsy: hamstring surgery and anterior distal femoral hemiepiphysiodesis (also called “guided growth”). Both papers were published in the Journal of Children’s Orthopaedics.
Dr. Kay — who served as lead author on the hamstring surgery paper and a senior author on the guided growth publication — shares some of the group’s key recommendations.
Hamstring surgery
Hamstring lengthening is one of the most common surgeries to address crouch gait, but indications for this procedure have changed in recent years, Dr. Kay says. The panel agreed that:
“Hamstring transfer is a much bigger, more complicated and painful surgery,” Dr. Kay says. “There may be a role for it down the road, but right now the data don’t support it.”
Guided growth surgery
Anterior distal femoral hemiepiphysiodesis was first reported as a method to straighten out knee flexion contractures without cutting into the bone nearly 15 years ago, but it has become much more common in recent years as surgical techniques have evolved. The group agreed that:
One advantage is that it’s a low-risk procedure, with small incisions, Dr. Kay adds. Patients are able to start walking the same day as surgery.
What’s next?
The panel is now working on a consensus paper for foot and ankle surgeries in ambulatory children with cerebral palsy. Long term, the group hopes to do more prospective data collection and potentially create a registry to better track and study outcomes data from these procedures.
“It’s really important for surgeons to work together to continually optimize care for these patients,” Dr. Kay says. “Improving a child’s ability to walk has a major impact on the quality of life for that child and family. This is something that will affect them for the rest of their lives.”
About Children’s Hospital Los Angeles Children’s Hospital Los Angeles is at the forefront of pediatric medicine, offering acclaimed care to children from across the world, the country and the greater Southern California region. Founded in 1901, Children’s Hospital Los Angeles is the largest provider of care for children in Los Angeles County, the No. 1 pediatric hospital in California and the Pacific region, and is consistently ranked in the top 10 in the nation on U.S. News World Report’s Honor Roll of Best Children’s Hospitals. Clinical expertise spans the pediatric care continuum for newborns to young adults, from everyday preventive medicine to the most medically complex cases. Inclusive, compassionate, child- and family-friendly clinical care is led by physicians who are faculty members of the Keck School of Medicine of USC. Physicians translate the new discoveries, treatments and cures proven through the work of scientists in The Saban Research Institute of Children’s Hospital Los Angeles—among the top 10 children’s hospitals for National Institutes of Health funding—to bring answers to families faster. The hospital also is home to one of the largest training programs for pediatricians in the United States. To learn more, follow us on Facebook, Instagram, LinkedIn, YouTube and Twitter, and visit our blog at CHLA.org/blog.